What is a desmoid tumor? A desmoid tumor is a rare fibrous growth that can start in the arms, legs, or torso (body). They most commonly grow in the abdomen (belly). These tumors start in connective ...

Brooke was only three years old when she first learned about desmoid tumors. “My mother had six or seven,” she recalls.

The FDA approved Ogsiveo by drugmaker SpringWorks Therapeutics to manage desmoid tumors in adults—the first drug of its kind. The drug helps reduce the size of the non-cancerous tumors and ...

Brooke was only three years old when she first learned about desmoid tumors. “My mother had six or seven,” she recalls. Brooke’s mother also had 28 surgeries related to her desmoid tumors ...

My aunt, who had become a surrogate mother after my mom died when I was 9, told me that in addition to cancer, my mom had a desmoid tumor, a type of very rare, benign growth. There are only about ...

Clark later learned she has a rare type of tumor A week later, Clark got a call from a doctor congratulating her on her biopsy results: She didn't have cancer, but did have a desmoid tumor ...

The FDA approved SpringWorks’ Ogsiveo (nirogacestat) for treating adult patients with desmoid tumors who require systemic treatment in November 2023. Following the FDA nod, not only Ogsiveo ...

After a few "hiccups" (despite having Fast Track and Orphan drug designations) nirogacestat was approved to treat adult patients with progressing desmoid tumors who require systemic treatment in ...

Long-term follow-up data highlight further reductions in tumor size, increase in ORR with additional CRs, sustained improvement in desmoid tumor symptoms, and consistent safety profile ...

In addition to a portfolio of discovery-stage ADCs, our pipeline includes AL102, a gamma secretase inhibitor which is currently in a Phase 3 trial for treatment of desmoid tumors, as well as IM ...