Ivan, who was born with Ohtahara syndrome, a rare genetic condition, died at the age of six in 2009 after suffering from a form of epilepsy characterised by seizures and developmental delays ...

As Epygenix advances EPX-100, it also is considering opportunities to expand into other forms of genetic epilepsy, including Lennox–Gastaut syndrome, infantile spasm, and Ohtahara syndrome.